In Sickness and in Health

[tonyh29]

1 hour ago, chrisp65 said:

when I was getting what’s easiest described as sex migraines.

I'm sure it has bin Dunne but ... Mrs H29 suffers from these 

 

 

Whenever I want sex , she has a migraine 

[Seat68]

Saw a new doctor today as my arms and hands are now in massive pain. He gave me some painkillers and did a blood/urine test. Still waiting on the CT results. In jollier news, due to having no sense of taste, I have lost a stone. 

[bielesibub]

21 hours ago, Seat68 said:

Saw a new doctor today as my arms and hands are now in massive pain. He gave me some painkillers and did a blood/urine test. Still waiting on the CT results. In jollier news, due to having no sense of taste, I have lost a stone. 

Apologies for chiming in. I was interested to read your previous posts, you mentioned you were worried about MS. You've no doubt googled MS. MS is a many and varied disease, I know full too well. Seems no one person has the same symptoms or has the same path through the illness. I'm now 11 years from being diagnosed, it took the clowns down at Southampton General 2 years to get me diagnosed, another year of cocking about before they put me on any disease modifying meds - the sooner you get put on meds the better it seems. I know a load of people who lead a pretty happy normal life thanks to early diagnosis and DMTs.

My consultant said way back when, MS is usually the last thing they think someone might have because its symptoms masquerade as so many other things.

Did they give you a CT scan or an MRI? If its a CT then they chances are they are looking for something other than MS because a CT doesn't have the accuracy that an MRI does. What pain killers do they have you on, are they neuropathic pain killers?

BTW, I've not heard anyone else have a loss of taste with MS, have you had COVID recently? Good news about the weight loss.

[Seat68]

51 minutes ago, bielesibub said:

Apologies for chiming in. I was interested to read your previous posts, you mentioned you were worried about MS. You've no doubt googled MS. MS is a many and varied disease, I know full too well. Seems no one person has the same symptoms or has the same path through the illness. I'm now 11 years from being diagnosed, it took the clowns down at Southampton General 2 years to get me diagnosed, another year of cocking about before they put me on any disease modifying meds - the sooner you get put on meds the better it seems. I know a load of people who lead a pretty happy normal life thanks to early diagnosis and DMTs.

My consultant said way back when, MS is usually the last thing they think someone might have because its symptoms masquerade as so many other things.

Did they give you a CT scan or an MRI? If its a CT then they chances are they are looking for something other than MS because a CT doesn't have the accuracy that an MRI does. What pain killers do they have you on, are they neuropathic pain killers?

BTW, I've not heard anyone else have a loss of taste with MS, have you had COVID recently? Good news about the weight loss.

I had a CT scan and still waiting the results. My hope is after that, if it doesn't turn anything up I will have an MRI. Noone at this point has mentioned MS, it may be that they are ruling things out. The meds for my pain is Naproxen and Omeprazole. 

If my CT scan comes back with nothing I may message you for advice  @bielesibubif that's OK. It may not be MS but if it is I think the main thing is a diagnosis. 

Edited March 19 by Seat68

[Jonesy7211]

1 hour ago, Seat68 said:

I had a CT scan and still waiting the results. My hope is after that, if it doesn't turn anything up I will have an MRI. Noone at this point has mentioned MS, it may be that they are ruling things out. The meds for my pain is Naproxen and Omeprazole. 

If my CT scan comes back with nothing I may message you for advice  @bielesibubif that's OK. It may not be MS but if it is I think the main thing is a diagnosis. 

Omeprazole is for acid reflux usually, it's not for pain. I take it as I get chest pain that feels like a heart attack, and that totally clears the symptoms.

Regarding some of the issues you've reported, they could be auto immune related. I have UC, an auto immune condition, and over the last 2 years I've been diagnosed with a few other conditions including Reynauds, Bile acid malabsorbtion, and reactive arthritis. I've also been diagnosed with multiple undiagnosed autoimmune conditions that overlap, which I may never get an answer on.

The main thing I'm trying to say is that the more tests they do the more they can rule out cancer and other diseases that can end life prematurely. Unfortunately, with autoimmune diseases the saying that misery loves company is especially true. The majority of people with a single autoimmune disease will go on to have others. Fortunately, a lot of medicines for these conditions overlap, and once they figure out the right meds for person to be on life can improve. I changed my UC medication to suit both the UC and arthritis and I have no joint pain most of the time.

I may be well off the mark, but I'm just trying to give you hope that things go get easier, once you get on track with the tests. Unfortunately it just takes time. Best of luck.

Edited March 19 by Jonesy7211

[Jonesy7211]

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Edited March 19 by Jonesy7211

[Seat68]

21 minutes ago, Jonesy7211 said:

Omeprazole is for acid reflux usually, it's not for pain. I take it as I get chest pain that feels like a heart attack, and that totally clears the symptoms.

Regarding some of the issues you've reported, they could be auto immune related. I have UC, an auto immune condition, and over the last 2 years I've been diagnosed with a few other conditions including Reynauds, Bile acid malabsorbtion, and reactive arthritis. I've also been diagnosed with multiple undiagnosed autoimmune conditions that overlap, which I may never get an answer on.

The main thing I'm trying to say is that the more tests they do the more they can rule out cancer and other diseases that can end life prematurely. Unfortunately, with autoimmune diseases the saying that misery loves company is especially true. The majority of people with a single autoimmune disease will go on to have others. Fortunately, a lot of medicines for these conditions overlap, and once they figure out the right meds for person to be on life can improve. I changed my UC medication to suit both the UC and arthritis and I have no joint pain most of the time.

I may be well off the mark, but I'm just trying to give you hope that things go get easier, once you get on track with the tests. Unfortunately it just takes time. Best of luck.

That med might be for my coughing. Due to numb face/mouth I am also coughing a lot. He may think that might help. Not sure as I do not have acid reflux at all. 

[bielesibub]

2 hours ago, Seat68 said:

If my CT scan comes back with nothing I may message you for advice  @bielesibubif that's OK. It may not be MS but if it is I think the main thing is a diagnosis. 

feel free to message me, if I'm awake and able I'll reply. 

[pas5898]

Just posting in case it helps someone.

Back in November, my wife went to Latvia and came back really unwell. She went to the doctors, saw a GP, noticed her blood oxygen was low, anti biotics and a few days in bed and she was fine. A week later I felt terrible, spent a week in bed, couldn't get enough air in, coughing etc. Covid tests negative. Went to the doctors, the nurse said no sign of infection go home and it will get better.

Week or so later I was now struggling to breathe normally - again went to doctors. Didn't see a GP, saw some sort of nurse, did the usual observations - "it's a viral infection will get better".

4 days later - I could barely make it up the stairs without vomiting phlegm, high heart rate etc. Went to the doctors, same response. My wife kicked off, told me to go back, I ignored her as I just wanted to sleep and leaving the house was hard at this point.

3/4 days later, I was in bed, and physically could not get enough air in, panting, hallucinating etc. Wife called 999 as at one point I was unresponsive to her; ambulance dispatched, rushed to hospital. I just didn't have the ability to take in enough oxygen, my "resting" heart rate lying in hospital was 140+, I had infections in both lungs at the bottom and within the airwaves. I'd also cracked my left rib from coughing so much for a prolonged time. After 4 weeks of various anti biotics and steroids I recovered.

I'm 36 and now have permanent widening of my airwaves and quite severe scarring of the lungs. Previously, I was playing football twice a week, now I can barely run around with my kids in the back garden. Went to Disney Florida in Feb, spent half the time sitting down on benches. I missed 2 months work and most importantly the Man City and Arsenal games in December.

 

Moral of the story:

1) Listen to your wife.

2) If you feel something is wrong don't take no for an answer and ensure you see a proper GP. You pay for this service. Don't get fobbed off by under qualified and/or busy staff at the GP's surgery.

 

Edited March 19 by pas5898

[Jonesy7211]

39 minutes ago, pas5898 said:

2) If you feel something is wrong don't take no for an answer and ensure you see a proper GP. You pay for this service. Don't get fobbed off by under qualified and/or busy staff at the GP's surgery.

 

Agree with this. I was bleeding out of my back passage for 9 months after first seeing a GP, in constant agony, before I saw a specialist. They fobbed me off and said to me to come back in 6 months and to see if it was still happening. Made a GP appointment the next day to see somebody else and was quickly sent for an urgent referral at a different trust. A week later I was immediately hospitalized after seeing an amazing consultant and two weeks later I was diagnosed with UC and feeling better after being hooked up to IV steroids.

[bielesibub]

4 hours ago, pas5898 said:

Just posting in case it helps someone.

Back in November, my wife went to Latvia and came back really unwell. She went to the doctors, saw a GP, noticed her blood oxygen was low, anti biotics and a few days in bed and she was fine. A week later I felt terrible, spent a week in bed, couldn't get enough air in, coughing etc. Covid tests negative. Went to the doctors, the nurse said no sign of infection go home and it will get better.

Week or so later I was now struggling to breathe normally - again went to doctors. Didn't see a GP, saw some sort of nurse, did the usual observations - "it's a viral infection will get better".

4 days later - I could barely make it up the stairs without vomiting phlegm, high heart rate etc. Went to the doctors, same response. My wife kicked off, told me to go back, I ignored her as I just wanted to sleep and leaving the house was hard at this point.

3/4 days later, I was in bed, and physically could not get enough air in, panting, hallucinating etc. Wife called 999 as at one point I was unresponsive to her; ambulance dispatched, rushed to hospital. I just didn't have the ability to take in enough oxygen, my "resting" heart rate lying in hospital was 140+, I had infections in both lungs at the bottom and within the airwaves. I'd also cracked my left rib from coughing so much for a prolonged time. After 4 weeks of various anti biotics and steroids I recovered.

I'm 36 and now have permanent widening of my airwaves and quite severe scarring of the lungs. Previously, I was playing football twice a week, now I can barely run around with my kids in the back garden. Went to Disney Florida in Feb, spent half the time sitting down on benches. I missed 2 months work and most importantly the Man City and Arsenal games in December.

 

Moral of the story:

1) Listen to your wife.

2) If you feel something is wrong don't take no for an answer and ensure you see a proper GP. You pay for this service. Don't get fobbed off by under qualified and/or busy staff at the GP's surgery.

 

I think this cough thing is doing the rounds, the wife works in a school and loads of the staff and kids have *the cough*. One of my lads had it just after Christmas, he's a fit young footballer, it took him until the end of Feb to get rid of the cough. The wife and I caught it sometime in Feb, the wife still has the cough, I blacked out a few times with my coughing fits, thankfully I've not been in hospital but have been on antibiotics. I was weak before I got this infection, I'm proper feeble now. 

I agree with @pas5898, point 2 needs a bit of a caveat - If you are lucky enough to be able to make a GP appointment, do it, if not don't hesitate to dial 111 or even 999. I've seen some utter words removed in casualty, there just to get free sandwiches/evening meals - but all that almost deserves a thread of its own.

[mjmooney]

11 hours ago, bielesibub said:

I've seen some utter words removed in casualty, there just to get free sandwiches/evening meals

Wait, what? You get free sandwiches in A&E??? 

[Seat68]

On 19/03/2024 at 12:43, Seat68 said:

I had a CT scan and still waiting the results. My hope is after that, if it doesn't turn anything up I will have an MRI. Noone at this point has mentioned MS, it may be that they are ruling things out. The meds for my pain is Naproxen and Omeprazole. 

If my CT scan comes back with nothing I may message you for advice  @bielesibubif that's OK. It may not be MS but if it is I think the main thing is a diagnosis. 

I had the results of my CT scan. Not cancer, just no clue what it is, but very happy with that. So off to the doctor's tomorrow for weapons grade pain killers with the vain hope of getting some sleep, and also a referral for an MRI scan. On the pain scale my hands are an 8 or 9. 

[Xela]

8 minutes ago, Seat68 said:

I had the results of my CT scan. Not cancer, just no clue what it is, but very happy with that. So off to the doctor's tomorrow for weapons grade pain killers with the vain hope of getting some sleep, and also a referral for an MRI scan. On the pain scale my hands are an 8 or 9. 

Liked for not being cancer. 

Might be worth just booking an MRI scan privately - you'll be seen quickly. There are Nuffield places in Newcastle Under Lyme and Tettenhall, pretty sure you can just book direct with no referral. Around £500-£600 I think. My Dad is going private for a prostate MRI. 

[chrisp65]

Best wishes my man. Nothing else to say really, just make sure they are doing everything you think they can.

[Seat68]

MRI scan this coming Tuesday. I was about to go private but may now plough my money into the neurologist instead. 

[Xela]

On 19/04/2024 at 05:55, Seat68 said:

MRI scan this coming Tuesday. I was about to go private but may now plough my money into the neurologist instead. 

How did it go? 

[Seat68]

7 minutes ago, Xela said:

How did it go? 

Thanks for asking. Its a step along at this point. I had it and now wait for the results. That said I have also had a neurologist appointment through for mid may. I am tempted to say the drugs no longer work and my sleep is back to non existent. I am trying cbd oil in the hope it reduces pain. So far, so nothing.